The Central Register contains mandatory information that providers must submit to the NSW Ministry of Health for inclusion on the register.
Mandatory information includes information regarding every child born as a result of ART treatment using donated sperm, eggs or embryos, or born through surrogacy, and whose conception occurred after 1 January 2010. It includes:
- the full name, sex and date of birth of the child born as a result of ART treatment by the ART provider
- the name of the woman who gave birth to the child
- the full name and date and place of birth of the gamete donor.
The ART provider must also provide identifying information about the donors who donate sperm, eggs or embryos. Donors must provide the following Mandatory Information to ART providers for inclusion on the Central Register
- full name, residential address, date and place of birth
- Ethnicity and physical characteristics
- Any medical history or genetic test results of the donor or the donor’s family that are relevant to the future health of:
- a person undergoing ART treatment involving the use of the donated sperm, eggs or embryo, or
- any offspring born as a result of that treatment, or
- any descendent of any such offspring,
- sex and year of birth of other offspring arising from the donation
- name of each ART provider who has previously obtained donated sperm, eggs or embryo from the donor and the date on which the sperm, eggs or embryos were obtained.
ART providers must also collect non-identifying information (year of birth and sex) from donors about any offspring they have who have not been born as a result of ART treatment. Such information is also entered on the register, however it is only with that offspring’s consent that identifying information about him or her be shared.
Access by donor conceived people
Donor conceived people must be over 18 yeas of age to register or apply for information on the Central Register. It will therefore be 2028 before those who were donor conceived after 1 January 2010, can apply for information about their donor, or other offspring of their donor.
Access by parents of donor conceived people
Parents of children conceived after 1 January 2010 as a result of ART treatment using donated gametes can apply to the Central Register for non-identifying information about their child’s sperm, egg or embryo donor.
Identifying information can only be provided to the parent in the event of a medical emergency or life threatening situation, and must be reasonably necessary to save the life of the child or to prevent serious damage to the child’s physical or psychological health.
Access by Donors
When sperm, egg or embryo donation resulted in offspring conceived after 1 January 2010, mandatory non-identifying information held by the NSW Ministry of Health on the Central Register can be provided to the donor. The law currently provides that the information that will be shared includes the sex and year of birth of each offspring.
There is no legislative requirement for people wishing to apply for information to undergo counselling however, the NSW Department of Health ‘strongly recommends’ people seek counselling before applying for information held on the register.
Those seeking information must apply by completing an application form on the Department of Health website.